Parent-reported outcomes
| Parental factor | Parents (n=204) |
| Physical factors | |
| Pain | |
| Experienced pain in VAS, median (IQR) | 0 (0–2) |
| Fatigue | |
| Score (CIS-8) fatigue subscale, median (IQR) | 24.0 (15.0–33.0) |
| Percentage of severely fatigued (CIS-8≥35) | 21.5 |
| Physical symptoms | |
| Number of CFS-related symptoms, median (IQR) | 1.0 (0–2) |
| Psychosocial factors | |
| Pain catastrophising | |
| PCS-P total score, median (IQR) | 9.0 (4.0–14.5) |
| Distress | |
| DT-P stress thermometer, median (IQR) Percentage of clinically elevated distress (≥4) | 2.0 (1.0–5.0) 34.8 |
| Family empowerment | |
| FES family subscale, median (IQR) | 4.4 (4.1–4.8) |
| FES service system subscale, median (IQR) | 4.3 (4.0–4.8) |
VAS: range 0–10, FES: range 1–5, PCS-P: range 0–52, DT-P: range 0–10, CIS-8: range 8–56; CFS: range 0–8.
CFS, chronic fatigue syndrome; CIS-8, Eight-Item Checklist Individual Strength; DT-P, Distress Thermometer for Parents; FES, Family Empowerment Scale; PCS-P, Pain Catastrophising Scale for Parents; VAS, Visual Analogue Scale.