ACP practices of paediatric neurologists compared with paediatric haematologists
| Number of paediatricians who answered ‘often’ or ‘always’ for each question | p Value | ||
| Neurologists (n=186) | Haematologists (n=227) | ||
| Adolescent patients | |||
| Prognosis >1 year | |||
| Discuss medical condition | 85 (48) | 155 (69) | <0.01 |
| Verify understanding of medical condition | 77 (43) | 136 (61) | 0.01 |
| Promote sharing of treatment and care goals between patients and families | 28 (16) | 135 (61) | 0.43 |
| Discuss goals of treatment and care | 88 (49) | 126 (57) | 0.22 |
| Discuss where treatment and care will take place | 88 (50) | 98 (44) | 0.13 |
| Discuss prognosis | 64 (36) | 52 (23) | 0.37 |
| Discuss DNAR | 19 (11) | 17 (8) | 0.18 |
| Discuss ventilator treatment if the patient’s condition worsens | 35 (20) | 17 (8) | <0.01 |
| Prognosis <3 months | |||
| Discuss medical condition | 100 (56) | 135 (59) | 0.57 |
| Verify understanding of medical condition | 97 (55) | 125 (55) | 0.56 |
| Promote sharing of treatment and care goals between patients and families | 65 (37) | 133 (59) | 0.04 |
| Discuss goals of treatment and care | 91 (51) | 125 (55) | 0.93 |
| Discuss where treatment and care will take place | 100 (57) | 111 (50) | 0.65 |
| Discuss prognosis | 84 (49) | 67 (30) | 0.64 |
| Discuss DNAR | 49 (28) | 38 (17) | <0.01 |
| Discuss ventilator treatment if the patient’s condition worsens | 56 (32) | 42 (19) | <0.01 |
| Family | |||
| Prognosis >1 year | |||
| Discuss medical condition | 151 (83) | 201 (92) | 0.05 |
| Verify understanding of medical condition | 151 (83) | 200 (91) | 0.04 |
| Promote sharing of treatment and care goals between patients and families | 143 (79) | 192 (88) | 0.58 |
| Discuss goals of treatment and care | 144 (80) | 188 (86) | 0.13 |
| Discuss where treatment and care will take place | 135 (75) | 181 (83) | 0.11 |
| Discuss prognosis | 118 (67) | 163 (75) | 0.29 |
| Discuss DNAR | 84 (46) | 96 (44) | 0.78 |
| Discuss ventilator treatment if the patient’s condition worsens | 94 (52) | 95 (43) | 0.18 |
| Prognosis <3 months | |||
| Discuss medical condition | 158 (89) | 213 (96) | 0.03 |
| Verify understanding of medical condition | 157 (88) | 212 (96) | 0.10 |
| Promote sharing of treatment and care goals between patients and families | 156 (88) | 207 (94) | 0.23 |
| Discuss goals of treatment and care | 153 (86) | 207 (94) | 0.18 |
| Discuss where treatment and care will take place | 152 (85) | 202 (91) | 0.30 |
| Discuss prognosis | 146 (82) | 196 (89) | 0.23 |
| Discuss DNAR | 124 (70) | 162 (73) | 0.68 |
| Discuss ventilator treatment if the patient’s condition worsens | 136 (76) | 166 (75) | 0.30 |
Data are presented as n (%). Percentage was calculated based on the number of respondents for each item.
p Values were calculated by logistic regression adjusted for sex, postgraduate experience and number of dying patients <18 years of age cared for.
ACP, advance care planning; DNAR, do not attempt resuscitation.