Table 5

Likelihood of paediatricians using different types of educational resources, if they were available

Type of resourceN* Likely to use N (%)Unlikely to use N (%)
A web portal providing fact sheets about specific rare diseases which you could give to your patients239228 (95)11 (5)
A web portal providing a listing of support groups available for your patients and their families238222 (93)16 (7)
A web portal providing a listing of specialists and specialist clinics you can refer your patients to238196 (82)42 (18)
Online modules via the APSU or RACP about specific rare diseases or groups of rare diseases240188 (78)52 (22)
Online modules via the APSU or RACP about how to use already existing online resources237166 (70)71 (30)
Smartphone/tablet applications on rare disease diagnosis and management232166 (72)66 (28)
Printed materials/modules about specific rare diseases or groups of rare diseases234160 (68)74 (32)
Smartphone/tablet applications about how to use already existing online resources233153 (66)80 (34)
Face-to-face educational workshops/seminars about specific rare diseases or groups of rare diseases235149 (63)86 (37)
Face-to-face educational workshops/seminars about how to use already existing on-line resources237122 (51)115 (49)
  • *Number of respondents that answered this question.

  • APSU, Australian Paediatric Surveillance Unit; RACP, Royal Australasian College of Physicians.