(B) Adult report across sex of rearing, treatment status, gender change history and visibility of DSD
SSS-DSD
Adult report
Sex of rearingTreatment statusGender change historyVisibility of DSD
Men*Womenp†TreatedUntreatedpYes‡NopVisibleConcealable §p
(n=20)(n=14)(n=15)(n=19)(n=15)(n=19)(n=17)(n=17)
median (range)median (range)median (range)median (range)median (range)median (range)median (range)median (range)
Verbal stigmatisation12 ¶ (10–47)10 (10–28)0.7810 (10–36)14 (10–47)0.1414 (10–47)10 (10–28)0.1115 (10–47)10 (10–21) 0.015
Score range 10–50
Behavioural stigmatisation10 (10–26)11 (10–37)0.3010 (10–23)10 (10–37)0.2511 (10–31)10 (10–37) 0.03 13 (10–37)10 (10–11) 0.001
Score: range 8–40
Emotional problems14 (10–40)29 (10–47) 0.009 12 (10–40)21 (10–47)0.0716 (10–47)10 (10–44)0.5216 (10–47)16 (10–40)0.60
Score range: 9–45
Total score**37 (30–91)50 (31–100) 0.042 36 (30–83)48 (31–100) 0.046 41 (31–100)38 (30–97)0.8046 (31–100)38 (30–63)0.19
Score range 17–135
  • *The terms men and women are used according to the gender the patient presented himself or herself socially and to us when he or she participated in the study.

  • †Mann-Whitney U test was applied.

  • ‡Ediati et al.24

  • §Visible refers to all those aspects of physical and behavioural atypicality that cannot be hidden in social interaction. Concealable refers to physical atypicality that can be covered by clothes (partly hidden) and typical phenotype (hidden).

  • ¶For all sum scores, a higher score indicates a relatively higher level of stigma, atypicality, social exclusion or emotional problems.

  • **Unweighted sum score.

  • SSS-DSD, Social Stigmatization Scale–disorder of sex development.