Measurement overview of study phase 2
| Measurements | Phase 4 | |
| Parents | HCPs | |
| Qualitative | ||
| Content of ICP: to what extent does the ICP cover the reality of the situation from the perspective of the people involved | x | x |
| Procedures and goals: what is it like to create and maintain an ICP, reason and purpose regarding the ICP, shared process with child/parents, facilitators/barriers | x | x |
| Position, contribution of child/parents and its translation in the ICP: how it was established, recognisability of own contribution/perspective, future-oriented, was the development supportive or burdening, what does it mean for the parent-professional relationship | x | x |
| Role of the ICP in shared decision making and/or family-centred care. | X | x |
| Quantitative | ||
| Study-specific questionnaire on background variables, content, process and lay-out of ICP | x | x |
| MIDI | x | |
| CPOS-2 | x | |
| PREM Child Care | x | |
CPOS, Children’s Palliative Outcome Scale; HCPs, healthcare professionals; ICP, individual care plan; MIDI, Measurement Instrument for Determinants of Innovations; PREM, patient-reported experience measures.