Original articleYoung Adult Patients with a History of Pediatric Disease: Impact on Course of Life and Transition into Adulthood
Section snippets
Procedures
The course of life was examined in several patient groups participating in studies at the academic children’s hospitals in The Netherlands: survivors of childhood cancer (SCC), patients with anorectal malformations (ARM), patients with Hirschsprung disease (HD), patients with esophageal atresia (EA), and patients with end-stage renal disease (ESRD). Norm data of the Course of Life Questionnaire were available for young adults aged 18–30 years [19]. Therefore, patients either less than 18 years
Patients
The datasets provided information about the course of life of 1158 young adults aged 18–30 years: 348 SCC, 93 patients with ARM, 72 patients with HD, 61 patients with EA, 76 patients with ESRD (62 transplanted and 14 on chronic dialysis at the time of investigation), and 508 young adults from the general Dutch population (reference group). Four patients suffering from both HD and EA were included in both patient samples. The patients with ARM, HD, or ESRD represent a national sample.
Mean ages
Discussion
To achieve optimal transition from pediatric to adult health care, physicians should have knowledge of the medical as well as the psychosocial history of patients grown up with a chronic disease. Therefore, the course of life of young adults grown up with diverse diseases (CC, ARM, HD, EA, ESRD) was investigated and compared with that of a reference group of young adults from the general Dutch population.
The young adults grown up with a chronic disease (as a whole) reported a delayed course of
Acknowledgments
The research reported in this article has been supported and financed by the Dutch Cancer Society, the Netherlands Digestive Diseases Foundation, and the Dutch Kidney Association. We thank Dr. D.C. Aronson, Prof. Dr. H.N. Caron, Dr. B.F. Last, and Prof. Dr. M.A.G. Sprangers for their supervision and counseling on the several studies.
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