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Original article
Rare disease: a national survey of paediatricians’ experiences and needs

Authors

  • Yvonne Zurynski Australian Paediatric Surveillance Unit, Kids Research Institute, Westmead, New South Wales, Australia Discipline of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Aranzazu Gonzalez Australian Paediatric Surveillance Unit, Kids Research Institute, Westmead, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Marie Deverell Australian Paediatric Surveillance Unit, Kids Research Institute, Westmead, New South Wales, Australia Discipline of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Amy Phu Australian Paediatric Surveillance Unit, Kids Research Institute, Westmead, New South Wales, Australia Discipline of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Helen Leonard Telethon Kids Institute, The University of Western Australia, West Perth, Western Australia, Australia PubMed articlesGoogle scholar articles
  • John Christodoulou Murdoch Children’s Research Institute, University of Melbourne, Melbourne, Victoria, Australia Clinical School, Sydney Children’s Hospital Network, Sydney, New South Wales, Australia Genetic Metabolic Disorders Research Unit, Western Sydney Genetics Program, the Children’s Hospital at Westmead, Westmead, New South Wales, Australia PubMed articlesGoogle scholar articles
  • Elizabeth Elliott Australian Paediatric Surveillance Unit, Kids Research Institute, Westmead, New South Wales, Australia Discipline of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia Department of Paediatrics, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Google scholar articles
  1. Correspondence to and Dr Yvonne Zurynski, Australian Paediatric Surveillance Unit, Kids Research Institute, Westmead, NSW 2145, Australia; yvonne.zurynski{at}health.nsw.gov.au
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Citation

Zurynski Y, Gonzalez A, Deverell M on behalf of the APSU Impacts of Rare Diseases Study Partners, et al
Rare disease: a national survey of paediatricians’ experiences and needs

Publication history

  • Received June 27, 2017
  • Revised September 4, 2017
  • Accepted September 5, 2017
  • First published October 5, 2017.
Online issue publication 
October 05, 2017

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