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OP-135 Step by step towards global digital child care
  1. Liesbeth Siderius1,
  2. Sahan Perera2
  1. 1Rare Care Would Foundation, Loosdrecht, The Netherlands
  2. 2Post Graduate Institute of Medicine, University of Colombo, Colombo, Sri Lanka


Aim The WHO Pocket Book on Primary health care for Children and Adolescents, 2022, includes standards for the quality of care provided to children and adolescents, which should be applied in all primary care settings. At present natural persons’ access to and control of their electronic health data is limited. Due to significant deficiencies in the interoperability of information systems used in the health- and wellbeing domain.

Material and Method To achieve digitalization and interoperability of child health data, information systems should be able to communicate with a structured set of international codes and terminologies such as the International Classification of Diseases (ICD) and International Classification of Function (ICF) as well as the numerical Logical Observation Identifiers Names and Codes (LOINC) (figure 1). The research employed a two-fold approach to achieve the objectives. Firstly, an analysis of WHO’s Pocket Book and recommendations on home-based records for maternal, newborn, and child health is conducted to ascertain relevant data points. Additionally, a survey is undertaken to identify a set of suitable terminologies for data coding and explore the Fast Healthcare Interoperable Resources (FHIR) framework’s standardization.

Results The study identified several data points for collection, including growth parameters such as weight, height, occipitofrontal circumference, and developmental milestones associated with diseases and disabilities, as in case of achondroplasia, thalassemia and Shwachman Diamond syndrome. Numeric data such as height, weight, head circumference measurements, and development can be followed in time and place and associated with the ICD and ICF.

Abstract OP-135 Figure 1

Body height in LOINC.

Conclusions The characteristic of child health care is that children grow and develop with age. This research offers a proof of concept for a comprehensive implementation guide that harnesses the power of ICD, ICF, LOINC and FHIR standards, facilitating the seamless integration of WHO’s quality healthcare standards into diverse primary care environments for children and adolescents.

  • WHO
  • digital health
  • primary care

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