Table 1

Involved family members and focus of each meeting in the family talk intervention.

MeetingInvolved family membersFocus of the meeting
1–2The parents/guardiansThe parents’ history. Setting up goals for the intervention.
3 (several meetings if there is more than one child in the family)Each child (preferably without parents/guardians)The child’s understanding of the illness and the situation. The child’s worries and questions.
4The parents/guardiansSummary of worries and questions from meeting 3. Planning ‘the family talk’ (meeting 5).
5The entire familyThe family talk. Preferably led by the parents and consisting of questions from both children and parents.
6The entire familyFollow-up with a focus on how to communicate within the family in the future to achieve the family’s goals.
7–11Extra meetings.