Ill child and siblings, 6–7 years | Ill child and siblings, 8–12 years | Ill child, 13–19 years | Siblings, 13 years and older | Parents/guardians | |||||||||||
B | F1 | F2 | B | F1 | F2 | B | F1 | F2 | B | F1 | F2 | B | F1 | F2 | |
Background and family characteristics | x | x | x | x | x | ||||||||||
Family communication | |||||||||||||||
FACES IV (family communication) | x | x | x | x | x | x | x | x | x | x | x | ||||
Study-specific questions | x | x | x | x | x | x | x | x | x | x | x | x | x | x | x |
Knowledge about the illness (study-specific questions) | x | x | x | x | x | x | x | x | x | x | x | x | x | x | x |
Resilience (resilience scale) | x | x | x | x | x | x | x | x | x | x | x | ||||
Quality of life (PedsQL) | x | x | x | x | x | x | x | x | x | x | x | x | x | x | x |
Grief experiences associated with illness (PG-12) | x | x | x | x | x | x | |||||||||
About the FTI (study-specific questions) | |||||||||||||||
Expectations | x | x | x | x | |||||||||||
Experiences of participation | x | x | x | x | x | x | x | x | x | x |
B, baseline; F1, follow-up 1; F2, follow-up 2; FACES IV, Family Adaptability and Cohesion Scale IV; FTI, family talk intervention; PedsQL, Paediatric Quality of Life Inventory; PG-12, Prolonged Grief Disorder.