Table 3

Results of our prospective survey. Quantities are percentage of respondents, with 95% Cs for each proportion. Following the national survey, we excluded ‘Don’t know/unnecessary’ responses from Q5 and Q6. This comprised 0.5% and 7% of responses respectively

Q1. Did new members of staff treating your child introduce themselves?Q2. Were you encouraged to be involved in decisions about your child’s care and treatment?Q3. Were you told different things by different people, which left you feeling confused?
NoYes, sometimesYes, alwaysNoYes, to some extentYes, definitelyYes, a lotYes, sometimesNo, never
385 parents of children who have had heart surgery
(% with 95% CI)
1 (0 to 2)18 (15 to 23)81 (76 to 85)3 (2 to 6)37 (32 to 42)59 (54 to 64)10 (7 to 13)53 (47 to 58)38 (33 to 43)
Q4. Were the different members of staff caring for and treating your child aware of their medical history?Q5. Before the operation or procedure, did a member of staff explain to you what would be done during the operation or procedure?Q6. Did a member of staff tell you what to do or whom to talk to if you were worried about your child when you got home?
NoYes, to some extentYes, definitelyNoYes, to some extentYes, completelyNoYes, to some extentYes, definitely
385 parents of children who have had heart surgery
(% with 95% CI)
2 (1 to 5)31 (26 to 36)66 (61 to 71)0 (0,1)9 (7 to 13)90 (87 to 93)4 (2 to 7)17 (13 to 22)79 (73 to 84)
  • Quantities are the percentage of respondents, with 95% CIs for each proportion. Following the national survey, we excluded ‘Do not know/unnecessary’ responses from Q5 and Q6. This comprised 0.5% and 7% of responses, respectively