Profile of cardiac disease-specific health-related quality of life (HRQOL)
| Scale | Child report | Parent report | ||
| N | Median (IQR) | N | Median (IQR) | |
| Total | ||||
| Heart problems and treatment | 154 | 75.0 (53.6–92.9) | 302 | 71.4 (53.6–85.7) |
| Treatment II | 90 | 95.0 (73.8–100.0) | 166 | 100.0 (75.0–100.0) |
| Physical appearance | 149 | 83.3 (66.7–100.0) | 280 | 100.0 (75.0–100.0) |
| Anxiety | 154 | 87.5 (62.5–100.0) | 301 | 81.3 (50.0–100.0) |
| Cognitive problems | 152 | 91.7 (68.8–100.0) | 282 | 100.0 (81.2–100.0) |
| Communication | 152 | 83.3 (66.7–100.0) | 250 | 83.3 (50.0–100.0) |
| 2–4 years | ||||
| Heart problems and treatment | NA | NA | 143 | 78.6 (60.0–89.3) |
| Treatment II | NA | NA | 76 | 100.0 (58.3–100.0) |
| Physical appearance | NA | NA | 125 | 100.0 (83.3–100.0) |
| Anxiety | NA | NA | 142 | 81.3 (50.0–100) |
| Cognitive problems | NA | NA | 126 | 100.0 (91.7–100.0) |
| Communication | NA | NA | 94 | 87.5 (56.2–100.0) |
| 5–7 years | ||||
| Heart problems and treatment | 64 | 85.7 (61.1–92.9) | 67 | 75.0 (53.6–85.7) |
| Treatment II | 38 | 100.0 (66.7–100.0) | 37 | 91.7 (75.0–100.0) |
| Physical appearance | 59 | 100.0 (83.3–100.0) | 64 | 100.0 (83.3–100.0) |
| Anxiety | 64 | 87.5 (50.1–100.0) | 67 | 68.8 (50.0–100.0) |
| Cognitive problems | 63 | 100.0 (83.0–100.0) | 65 | 100.0 (83.3–100.0) |
| Communication | 63 | 100.0 (66.7–100.0) | 65 | 83.3 (54.2–100.0) |
| 8–12 years | ||||
| Heart problems and treatment | 51 | 75.0 (46.4–85.7) | 52 | 66.1 (40.2–83.9) |
| Treatment II | 27 | 85.0 (70.0–95.0) | 27 | 90.0 (75.0–100.0) |
| Physical appearance | 51 | 83.3 (66.7–100.0) | 52 | 83.3 (52.1–100.0) |
| Anxiety | 51 | 81.3 (50.0–100.0) | 52 | 81.3 (50.0–100.0) |
| Cognitive problems | 51 | 83.3 (59.0–100.0) | 52 | 83.3 (60.4–100.0) |
| Communication | 50 | 83.3 (50.0–100.0) | 52 | 83.3 (50.0–100.0) |
| 13–18 years | ||||
| Heart problems and treatment | 39 | 64.3 (53.4–87.5) | 40 | 64.3 (47.3–85.7) |
| Treatment II | 25 | 95.0 (80.0–100.0) | 26 | 97.5 (88.8–100.0) |
| Physical appearance | 39 | 75.0 (50.0–100.0) | 39 | 66.7 (50.0–100.0) |
| Anxiety | 39 | 93.8 (75.0–100.0) | 40 | 87.5 (59.4–100.0) |
| Cognitive problems | 38 | 83.3 (64.6–100.0) | 39 | 83.3 (50.0–100.0) |
| Communication | 39 | 83.3 (66.7–100.0) | 39 | 83.3 (58.3–100.0) |
NA, not applicable.