Comparison of total and component scores of self-reported HRQOL: controls versus CHD subjects
| Scale | Controls | CHD | Adjusted median | |||
| N | Median (IQR) | N | Median (IQR) | Difference (99% CI) | P values | |
| 5–7 years | ||||||
| Total scale score | 121 | 91.3 (87.0–95.7) | 64 | 80.4 (67.4–89.1) | −12.0 (−18.0 to −5.9) | <0.001 |
| Physical health summary | 121 | 100.0 (93.8–100.0) | 64 | 81.3 (64.1–92.2) | −18.8 (−22.2 to −15.3) | <0.001 |
| Psychosocial health summary | 121 | 90.0 (83.3–93.3) | 64 | 78.9 (67.6–90.0) | −10.0 (−16.0 to −4.0) | <0.001 |
| Emotional functioning | 121 | 80.0 (70.0–90.0) | 64 | 80 (60.9–100.0) | 0.0 (−9.5 to 9.5) | 1.000 |
| Social functioning | 121 | 100.0 (100.0–100.0) | 64 | 80 (80.0–100.0) | −20.0 (−20.0 to −20.0) | <0.001 |
| School functioning | 121 | 90.0 (80.0–100.0) | 61 | 80 (60.0–95.0) | −10.0 (−19.7 to −0.3) | 0.008 |
| 8–12 years | ||||||
| Total scale score | 244 | 91.3 (82.6–95.7) | 50 | 67.1 (54.3–77.2) | −23.9 (−29.1 to −18.7) | <0.001 |
| Physical health summary | 244 | 96.9 (87.5–100.0) | 50 | 67.3 (52.3–82.0) | −31.3 (−41.6 to −20.9) | <0.001 |
| Psychosocial health summary | 244 | 88.3 (80.0–93.3) | 50 | 66.9 (55.0–76.7) | −21.5 (−27.7 to −15.4) | <0.001 |
| Emotional functioning | 244 | 80.0 (70.0–90.0) | 50 | 65.3 (50.2–75.0) | −19.8 (−29.3 to10.3) | <0.001 |
| Social functioning | 244 | 100.0 (95.0–100.0) | 50 | 80 (63.9–100.0) | −20.0 (−20.0 to −20.0) | <0.001 |
| School functioning | 244 | 90.0 (75.0–100.0) | 50 | 65.3 (45.0–80.0) | −24.8 (−35.5 to −14.1) | <0.001 |
| 13–18 years | ||||||
| Total scale score | 220 | 89.1 (80.4–94.6) | 41 | 69.6 (53.7–80.1) | −22.8 (−32.0 to −13.7) | <0.001 |
| Physical health summary | 220 | 93.8 (84.4–100.0) | 41 | 65.6 (44.0–78.1) | −34.1 (−42.0 to −26.3) | <0.001 |
| Psychosocial health summary | 220 | 86.7 (78.3–93.3) | 41 | 70.1 (61.7–85.8) | −18.3 (−27.7 to −9.0) | <0.001 |
| Emotional functioning | 220 | 80.0 (65.0–90.0) | 41 | 70 (50.2–80.0) | −10.0 (−22.6 to −2.6) | 0.040 |
| Social functioning | 220 | 100.0 (90.0–100.0) | 41 | 90 (75.0–100.0) | −10.0 (−10.0 to −10.0) | <0.001 |
| School functioning | 220 | 90.0 (70.0–95.0) | 40 | 70 (45.1–80.0) | −22.5 (−35.5 to −10.5) | <0.001 |
| Total | ||||||
| Total scale score | 585 | 91.3 (82.6–95.7) | 155 | 71.7 (62.0–84.8) | −20.6 (−24.9 to −16.3) | <0.001 |
| Physical health summary | 585 | 96.9 (87.5–100.0) | 155 | 68.8 (53.5–87.5) | −25.0 (−29.0 to −21.1) | <0.001 |
| Psychosocial health summary | 585 | 88.3 (80.0–93.3) | 155 | 73.3 (61.7–86.7) | −18.3 (−22.5 to −14.1) | <0.001 |
| Emotional functioning | 585 | 80.0 (70.0–90.0) | 155 | 70 (60.0–80.4) | −10.0 (−15.3 to −4.7) | <0.001 |
| Social functioning | 585 | 100.0 (95.0–100.0) | 155 | 80 (70.0–100.0) | −20.0 (−20.0 to −20.0) | <0.001 |
| School functioning | 585 | 90.0 (75.0–100.0)) | 151 | 70 (55.0–80.0) | −20.0 (−25.8 to −14.2) | <0.001 |
CHD, congenital heart disease; HRQOL, health-related quality of life.