| Differing priorities of HCP and families |
‘NG feeding was never something I thought about when we considered the prospect of having a congenital heart disease child.’
‘We weren’t mentally prepared for the longer stay as we were told ‘in and out in 5 days’.’
‘I really wish someone had prepared me for the psychological side effects… anything explaining how trauma and complications can have a negative impact on your child’s self-esteem and mental well-being’
‘Tell parents beforehand… This is very likely going to affect development in growth, height, learning and development and things like that’
‘They do tell you some of the physical things that might happen’ but not ‘how it might affect… a person’s behaviour or emotions’
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| Timing of consent |
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