Delphi consensus survey—results from round 1
| Round 1 | % agree | % middle ground | % disagree |
| Q5. All children with CHD and amber BDA should be under the care of a (general paediatrician if no PEC) based at their local hospital. | 75 | 16 | 9 |
| Q6. If a child with CHD and amber BDA is not under the care of a PEC it is the responsibility of the child's paediatric cardiologist to refer the child to a PEC*(local general paediatrician if no PEC). | 79 | 12 | 9 |
| Q7. If a child with CHD and amber BDA is not under the care of a (local general paediatrician if no PEC), then a referral from the tertiary hospital under a specialist nursing team to a PEC/general paediatrician is acceptable. | 60 | 25 | 16 |
| Q8. The request for referral should have clinical details and the BDA assessment. | 87 | 6 | 6 |
| Q9. The complete results of the amber BDA should be shared with the child’s PEC*(local general paediatrician). | 91 | 6 | 3 |
| Q10. The complete results of the amber BDA should be shared with the child’s GP. | 91 | 5 | 4 |
| Q11. The complete results of the amber BDA should be shared with the child’s HV. | 84 | 10 | 5 |
| Q12. All children with CHD and an amber BDA at the point of discharge following cardiac intervention should be re-assessed (in terms of development and general health) after a period of time by the PEC*(local general paediatrician). | 65 | 21 | 14 |
| Q13. All children with congenital heart disease and an amber BDA at the point of discharge following cardiac intervention should be re-assessed after a defined period of time by the child's HV. | 71 | 18 | 10 |
| Q14. All children with congenital heart disease and an amber BDA at the point of discharge following cardiac intervention should be re-assessed after a defined period of time by the child's GP. | 35 | 43 | 22 |
| Q15. Referral of children with CHD and amber BDA (not already under local health services) to community paediatrician should be undertaken at the point of first assessment when an amber BDA is detected at discharge following cardiac intervention. | 64 | 22 | 14 |
| Q16. Referral of children with CHD and amber BDA (not under local health services) to PEC*(local general paediatrician) should be undertaken at the point of first assessment when an amber BDA is detected at discharge following cardiac intervention. | 70 | 18 | 12 |
| Q17. Children with CHD and amber BDA should be re-assessed after a defined period and then referred to a community paediatrician if there is on-going concern. | 70 | 18 | 12 |
| Q18. Referral of children with CHD and amber BDA to a community paediatrician should be undertaken by the PEC*(local general paediatrician if no PEC). | 69 | 21 | 10 |
| Q19. Referral of children with CHD and amber BDA to a community paediatrician should be undertaken by the child's HV. | 40 | 35 | 25 |
| Q20. Referral of children with CHD and amber BDA to a community paediatrician should be undertaken by the tertiary paediatric cardiac team. | 48 | 29 | 23 |
| Q21. All children with CHD and red BDA should be under the care of a PEC* (local general paediatrician if no PEC) based at their local hospital. | 77 | 17 | 6 |
| Q22. If a child with CHD and red BDA is not under the care of a PEC* (local general paediatrician if no PEC), it is the responsibility of the child’s paediatric cardiologist to refer the child to a PEC* (local general paediatrician if no PEC). | 79 | 17 | 4 |
| Q23. If a child with CHD and red BDA is not under the care of a PEC* (local general paediatrician), then a referral from the tertiary hospital specialist nursing team to a PEC*(local general paediatrician) is acceptable. | 55 | 29 | 17 |
| Q24. The complete results of the red BDA should be shared with the child’s PEC* (local general paediatrician if no PEC). | 94 | 5 | 1 |
| Q25. The complete results of the red BDA should be shared with the child’s GP. | 91 | 8 | 1 |
| Q26. The complete results of the red BDA should be shared with the child’s HV. | 92 | 6 | 1 |
| Q27. The complete results of the red BDA should be shared with other relevant health professionals involved with the child such as neurologist, child development clinic, and geneticist. | 95 | 4 | 1 |
| Q28. All children with CHD and red BDA should be under the care of a community paediatrician and local child development team. | 91 | 6 | 3 |
| Q29. Referral of children with CHD and red BDA to a community paediatrician should be undertaken at the point of first assessment where an abnormal BDA is recorded at discharge following cardiac intervention (if child is not already under one). | 81 | 16 | 4 |
| Q30. Referral of children with CHD and red BDA to a community paediatrician should be undertaken if there is on-going concern after a period of re-assessment by the child’s PEC*(local general paediatrician if no PEC). | 64 | 21 | 16 |
| Q31. Referral of children with CHD and red BDA to a community paediatrician should be undertaken by the child’s *(local general paediatrician if no PEC). | 73 | 21 | 6 |
| Q32. Referral of children with CHD and red BDA to a community paediatrician should be undertaken by the child’s HV. | 43 | 31 | 26 |
| Q33. Referral of children with CHD and red BDA to a community paediatrician should be undertaken by the child’s GP | 39 | 32 | 29 |
| Q34. Referral of children with CHD and red BDA to a community paediatrician should be undertaken by the child’s paediatric cardiac team | 69 | 19 | 12 |
The results from responses were coded as: agree—if the level of agreement was 7, 8 or 9; middle ground—if the level of agreement was 4, 5 or 6; and disagree—if the level of disagreement was 1, 2 or 3.
BDA, brief developmental assessment; CHD, congenital heart disease; GP, general practitioner; HV, health visitor; PEC, paediatricians with expertise in cardiology.