Theme and subthemes
| Themes | Subthemes |
| Difficulties associated with establishing a diagnosis of congenital CMV | Shock of diagnosis Lack of awareness among medical community Disorganised pathways to diagnosis |
| Burden associated with caring for a child with congenital CMV | Dealing with uncertainty and unpredictability Loss of a dream Guilt and responsibility |
| Societal network: facilitators and barriers to coping | Support (or lack of support) from family and community Support (or lack of support) from professionals Raising awareness and educating wider community |
CMV, cytomegalovirus.