Table 1

Summary of the participating children and their parents

Variable	Category	N	%	Median (IQR)
Parent(s) present at the interview	Mother	22	71.0
	Father	1	3.2
	Both parents	8	25.8
Parent’s age (N=28)*	<40 years	3	10.7	48.1 (35.4–54.2)
	40–49 years	15	53.6
	≥50 years	10	35.7
Child’s sex	Female	19	61.3
Child’s sex	Male	12	38.7
Child’s age	8–11 years	12	38.7	13.1 (8.0–19.1)
	12–15 years	11	35.5
	16–19 years	8	25.8
Disease/ condition	Cystic fibrosis	11	35.5
	Autoimmune disease	11	35.5
	Postcancer treatment	9	29.0
School presence in the past 2 weeks	Total	31	100	100 (0–100)
	≥90% of the time	21	77.8
	<90% of the time	10	32.2
Fatigue†	PedsQL general fatigue score (range 0–100)	31	100	79.2 (25–100)
	Fatigued (score of >1 SD below the reference values on PedsQL MFS)	12	38.7	79.2 (25–100)
Pain	VAS (range 0–10)	31	100	2.0 (0–9)
Pain	VAS≥3 over the past week	11	35.5	2.0 (0–9)

*Only available for 28 parents.
†Score 0–100, with lower scores indicating increased fatigue.
PedsQL MFS, Paediatric Quality of Life Inventory Multidimensional Fatigue Scale; VAS, Visual Analogue Scale.