Summary of the participating children and their parents
Variable | Category | N | % | Median (IQR) |
Parent(s) present at the interview | Mother | 22 | 71.0 | |
Father | 1 | 3.2 | ||
Both parents | 8 | 25.8 | ||
Parent’s age (N=28)* | <40 years | 3 | 10.7 | 48.1 (35.4–54.2) |
40–49 years | 15 | 53.6 | ||
≥50 years | 10 | 35.7 | ||
Child’s sex | Female | 19 | 61.3 | |
Male | 12 | 38.7 | ||
Child’s age | 8–11 years | 12 | 38.7 | 13.1 (8.0–19.1) |
12–15 years | 11 | 35.5 | ||
16–19 years | 8 | 25.8 | ||
Disease/ condition | Cystic fibrosis | 11 | 35.5 | |
Autoimmune disease | 11 | 35.5 | ||
Postcancer treatment | 9 | 29.0 | ||
School presence in the past 2 weeks | Total | 31 | 100 | 100 (0–100) |
≥90% of the time | 21 | 77.8 | ||
<90% of the time | 10 | 32.2 | ||
Fatigue† | PedsQL general fatigue score (range 0–100) | 31 | 100 | 79.2 (25–100) |
Fatigued (score of >1 SD below the reference values on PedsQL MFS) | 12 | 38.7 | ||
Pain | VAS (range 0–10) | 31 | 100 | 2.0 (0–9) |
VAS≥3 over the past week | 11 | 35.5 |
*Only available for 28 parents.
†Score 0–100, with lower scores indicating increased fatigue.
PedsQL MFS, Paediatric Quality of Life Inventory Multidimensional Fatigue Scale; VAS, Visual Analogue Scale.