Table 3

Parent-reported outcomes

Parental factorParents (n=204)
Physical factors
  Experienced pain in VAS, median (IQR)0 (0–2)
  Score (CIS-8) fatigue subscale, median (IQR)24.0 (15.0–33.0)
  Percentage of severely fatigued (CIS-8≥35)21.5
 Physical symptoms
  Number of CFS-related symptoms, median (IQR)1.0 (0–2)
Psychosocial factors
 Pain catastrophising
  PCS-P total score, median (IQR)9.0 (4.0–14.5)
  DT-P stress thermometer, median (IQR)
  Percentage of clinically elevated distress (≥4)
2.0 (1.0–5.0)
 Family empowerment
  FES family subscale, median (IQR)4.4 (4.1–4.8)
  FES service system subscale, median (IQR)4.3 (4.0–4.8)
  • VAS: range 0–10, FES: range 1–5, PCS-P: range 0–52, DT-P: range 0–10, CIS-8: range 8–56; CFS: range 0–8.

  • CFS, chronic fatigue syndrome; CIS-8, Eight-Item Checklist Individual Strength; DT-P, Distress Thermometer for Parents; FES, Family Empowerment Scale; PCS-P, Pain Catastrophising Scale for Parents; VAS, Visual Analogue Scale.