Table 1

Summary of the factors assessed in this study and features of the corresponding questionnaires/tools

Assessed factor	Questionnaire	Items	Range/replies	Cronbach’s alpha
Paediatric fatigue	PedsQL MFS	6	0–100: higher score=less paediatric fatigue	0.92
Parental pain	VAS	1	0–10: higher score=more parental pain	N/A
Parental fatigue	CIS-8	8	8–56: higher score=more parental fatigue	0.93
Parental physical symptoms	CDC criteria for CFS-related symptoms	8	0–8: higher score=more parental physical symptoms	0.79
Parental pain catastrophising	PCS-P	13	0–52: higher score=more parental pain catastrophising	0.93
Parental distress	DT-P	1	0–10: higher score=more parental distress	N/A
Family empowerment family subscale	FES	12	1–5: higher score=more parental empowerment. The score is calculated as the mean of the items.	0.89
Family empowerment service system subscale	FES	12	1–5: higher score=more parental empowerment. The score is calculated as the mean of the items.	0.91

CDC, Centers for Disease Control and Prevention; CFS, chronic fatigue syndrome; CIS-8, Eight-Item Checklist Individual Strength; DT-P, Distress Thermometer for Parents; FES, Family Empowerment Scale; PCS-P, Pain Catastrophising Scale for Parents; PedsQL MFS, PedsQL Multidimensional Fatigue Scale; VAS, Visual Analogue Scale.