Table 2

Outcomes presented in the survey

CategoryOutcomes
Child physical healthBetter general health (eg, less colds or infections)
Better sitting
Fewer abnormal or unusual movements
Fewer/shorter hospital admissions
Improved nutrition
Increased growth
Less pain
Weight gain
Eating, drinking and swallowing performanceBetter coordination of swallowing and breathing
Better oral-motor function (eg, chewing, biting)
Fewer breathing changes (any of rate, noise, effort, coughing, antibiotics courses, chest infections) linked to eating, drinking and swallowing
Less aversion/avoidance of particular foods
Less drooling
Less food/drink spilled from lips
More food/drink consumed
Shorter mealtimes
Wider range of foods eaten
Child’s quality of life and participationBetter mealtime one to one interaction with child
Better quality of life for child
Better self-feeding/independence skills
Child able to communicate better for example, to express preferences or make choices
Child enjoys mealtimes more
Child less frustrated or distressed at mealtimes
More involvement in family’s activities for example, eating with family or outside of the home
Parent/carer/family-related outcomesBeing able to eat a meal somewhere outside the home
Better understanding of child’s difficulties and strategies to support them
Less food waste/reduced cost of food
Less parental/carer stress
More opportunity to talk to others about feelings about child’s eating and drinking difficulties
Not having to prepare separate meals for the child
Parent/carer enjoys mealtimes more
Parent/carer less frustrated or distressed at mealtimes