Table 3

Sources of ongoing support: how helpful are they?

Very helpfulQuite helpfulNot very helpfulNot applicable
Contacting your community nurse90 (62%)28 (19%)13 (9%)15 (10%)
Contacting your hospital team34 (23%)37 (25%)38 (26%)37 (25%)
Facebook groups54 (37%)67 (46%)11 (8%)14 (10%)
Conversations with other parents of children with similar needs82 (56%)47 (32%)3 (2%)14 (10%)
Written information booklets provided by a healthcare professional28 (19%)68 (47%)32 (22%)18 (12%)
NHS websites15 (10%)55 (38%)52 (36%)24 (16%)
Charities25 (17%)53 (36%)19 (13%)49 (34%)
Videos29 (20%)50 (34%)17 (12%)50 (34%)