Table 1

The participants who completed the full survey

N (%)
Relation to child
 Mother133 (91%)
 Father8 (6%)
 Other family member5 (3%)
Age of participants’ children (years)
 0–450 (34%)
 5–938 (26%)
 10–1439 (27%)
 15–1918 (12%)
 20–251 (1%)
Time since initial gastrostomy surgery (years)
 <1 year15 (10%)
 1–241 (28%)
 3–427 (18%)
 5+years63 (43%)
Type of gastrostomy device that the child has or previously had *
 PEG tube73 (50%)
 Gastrostomy button (MINI or Mic-Key)115 (79%)
 Another device (eg, GJ tube)23 (16%)
  • *Some children had more than one gastrostomy device, for example, some children had a PEG tube initially which was later changed to a gastrostomy button.

  • GJ, gastrojejunostomy; PEG, percutaneous endoscopic gastrostomy.