Type of resource | N* | Likely to use N (%) | Unlikely to use N (%) |
A web portal providing fact sheets about specific rare diseases which you could give to your patients | 239 | 228 (95) | 11 (5) |
A web portal providing a listing of support groups available for your patients and their families | 238 | 222 (93) | 16 (7) |
A web portal providing a listing of specialists and specialist clinics you can refer your patients to | 238 | 196 (82) | 42 (18) |
Online modules via the APSU or RACP about specific rare diseases or groups of rare diseases | 240 | 188 (78) | 52 (22) |
Online modules via the APSU or RACP about how to use already existing online resources | 237 | 166 (70) | 71 (30) |
Smartphone/tablet applications on rare disease diagnosis and management | 232 | 166 (72) | 66 (28) |
Printed materials/modules about specific rare diseases or groups of rare diseases | 234 | 160 (68) | 74 (32) |
Smartphone/tablet applications about how to use already existing online resources | 233 | 153 (66) | 80 (34) |
Face-to-face educational workshops/seminars about specific rare diseases or groups of rare diseases | 235 | 149 (63) | 86 (37) |
Face-to-face educational workshops/seminars about how to use already existing on-line resources | 237 | 122 (51) | 115 (49) |
*Number of respondents that answered this question.
APSU, Australian Paediatric Surveillance Unit; RACP, Royal Australasian College of Physicians.