Description of focused impact
| Study | Focused impact | |
| Knight et al27 | ‘A number of questions considered during the process were submitted by non-professionals and would not have been considered without their involvement’. | Different questions |
| Verwoerd et al17 | ‘For both patients and carers, 60% of the questions were selected, for clinicians it was 80%. For the focus groups 2 out of 5 were parts of the final top 10.” | |
| Lopez-Vargas et al33 | "For children, there was an emphasis for research to help them maintain a sense of normality and to be empowered for self-management and partnership in care.” | |
| Vella-Baldachchino et al24 | “While the surgeon’s questions focused on the management of specific conditions, the JLA PSP top priorities also included other questions.” | |
| Grant et al18 | ‘Many of the questions were similarly ranked across patient/caregiver and clinicians, whereas some had differences in ranks’. | Different priorities |
| Fackrell et al19 | ‘There were notable differences in the interim prioritization between patients and professionals (professionals: effective treatments, patients: causes)’. “Using weighted ranking, top 10 reflected the mixed priorities from all stakeholders’. | |
| Birnie et al22 | ‘Our involvement of youth and family members led to different identified priorities compared to prior priority setting efforts with no public or youth involvement’. | |
| Peeks et al29 | ‘It is important to note that these priorities did not match those deemed by professionals alone. Professionals prioritized metabolic control, and the role of diet. Patients emphasized the importance of natural progression of disease and complications’. | |
| Finer et al28 | ‘It is notable that the final top 10 research priorities identified in the final workshop differed considerably form those ranked at the interim priority setting’. |