Included studies that used other methods than the James Lind Alliance approach
| Authors (year) | Title | Topic | Children/young people | Method | Country |
| Schilstra et al34 (2021) | ‘We have all this knowledge to give, so use us as a resource’: partnering with adolescent and young adult cancer survivors to determine consumer-led research priorities | Cancer | 19–22 (n=4) workshop | Workshop and survey | Australia |
| Shattuck et al36 (2018) | A national research agenda for the transition of youth with autism | Youth with autism | Young adults, no age specified (n=2), involved in national research agenda meeting | Scoping review, stakeholders interview, 2-day national research agenda meeting, Delphi survey and two reviews | USA |
| von Scheven et al35 (2020) | Research questions that matter to us: priorities of young people with chronic illnesses and their caregivers | Young people with chronic illnesses | 15–18 years (n=6) and 21–22 years (n=5) | Research prrioritisation by affected communities method | USA |
| Lopez-Vargas et al33 (2018) | Research priorities for childhood chronic conditions: a workshop report | Childhood chronic conditions | 8–14 years (n=3) | Workshop | Australia |
| Manikam et al32 (2016) | Using a co-production prioritisation exercise involving South Asian children, young people and their families to identify health priorities requiring further research and public awareness | South Asian children and health priorities | 16–24 years: number not specified | Focus groups | UK |
| Parsons et al9 (2017) | What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study | Young people with rheumatic disease | 11–15 years (n=30) and 16–24 years (n=33), all involved in different focus groups | 16 focus groups | UK |