| Phase 1 | Parent of a child with a life-limiting or life-threatening condition alive or deceased in the 36 months prior to the inclusion In possession of a completed ICP 1.0 Able to understand and follow study procedures Can read and understand the Dutch language
| | Known with a life-limiting or life-threatening condition 12 years or older In care of a CPC team In possession of a completed ICP 1.0 Deemed competent by parents and the lead physician Can read and understand the Dutch language
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| Phase 4 | Parent of a child with a life-limiting or life-threatening condition for whom a ICP 2.0 is in progress or completed within the implementation period Able to understand and follow study procedures Can read and understand the Dutch language
| | Known with a life-limiting or life-threatening condition 12 years or older In care of a CPC team In possession of a completed or in progress ICP 2.0 Deemed competent by parents and the lead physician Can read and understand the Dutch language
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