Inclusion and exclusion criteria
| Inclusion criteria | Exclusion criteria |
| Parent is 16 years old or older | Parent is under 16 years old |
| Their child has medically complex needs | Their child does not have medically complex needs |
| Their child is 19 years old or younger | Their child is older than 19 years old |
| Those who can provide capacity to participate in the study, guided by the 2005 Mental Capacity Act | Those who lack capacity to participate in the study, guided by the 2005 Mental Capacity Act |
Ethical and governance approvals were obtained from HRA and Health and Care Research Wales (08/09/21, 300516) and Research Ethics Committee (08/09/21, 21/WA/0257).