Economic outcomes
| Economic outcome domains | Number of studies discussing outcome domain (n=62) | Outcome | Number of studies discussing outcome (n=62) | Verbatim text extract |
| Healthcare utilisation | 15 | Frequent appointments | 2 | ‘I felt left out, I was always missing school because I had to go to the hospital for check-ups.’ 48 |
| Frequent readmissions | 4 | The prolonged hospitalisations experienced by children with BPD and the frequent interactions of families with medical personnel may result in increased access and opportunities for services for parents of children with BPD. 74 | ||
| Inappropriate treatments | 2 | Community providers…may lack the required knowledge and skills to manage complex infants, leading to suboptimal office-based care and perceived overutilisation of the emergency system. 69 | ||
| Need for frequent treatments | 3 | ‘There were lots of masks and nebulisers during those years.’ 43 | ||
| Need for lifelong care | 3 | ‘When the outcome is disastrous they just expect parents to take home severely handicapped babies and deal with life-long problems.’ 75 | ||
| Recurrent sickness | 1 | ‘We’ve only put him with other children for the past month. The biggest worry right now is when he is going to get sick.’ 58 | ||
| Other outcomes | Duration of admission | 2 | Decrease length of stay selected as key performance indicator 59 | |
| Healthcare resources | 3 | Although respondents frequently discussed the emotional toll to all concerned, the monetary cost of long-term stays was very rarely (<1%) mentioned. 55 |
BPD, borderline personality disorder.