Systematic review of tools to measure outcomes for young children with autism spectrum disorder

H McConachie, JR Parr, M Glod, J Hanratty… - 2015 - ore.exeter.ac.uk
BACKGROUND: The needs of children with autism spectrum disorder (ASD) are complex
and this is reflected in the number and diversity of outcomes assessed and measurement …

Predictors of quality of life for autistic adults

D Mason, H McConachie, D Garland, A Petrou… - Autism …, 2018 - Wiley Online Library
Research with adults on the autism spectrum is as yet limited in scope and quality. The
present study describes quality of life (QoL) of a large sample of autistic adults in the UK and …

[HTML][HTML] Enhancing the validity of a quality of life measure for autistic people

H McConachie, D Mason, JR Parr, D Garland… - Journal of autism and …, 2018 - Springer
Accurate measurement of quality of life (QoL) is important for evaluation of autism services
and trials of interventions. We undertook psychometric validation of the World Health …

[HTML][HTML] Parents suggest which indicators of progress and outcomes should be measured in young children with autism spectrum disorder

H McConachie, N Livingstone, C Morris… - Journal of autism and …, 2018 - Springer
Abstract Evaluation of interventions for children with autism spectrum disorder (ASD) is
hampered by the multitude of outcomes measured and tools used. Measurement in research …

[HTML][HTML] “We couldn't think in the box if we tried. We can't even find the damn box”: A qualitative study of the lived experiences of autistic adults and relatives of autistic …

TL Finch, J Mackintosh, A Petrou, H McConachie… - PloS one, 2022 - journals.plos.org
Autistic children grow to become autistic adults, and autism is increasingly diagnosed in
adulthood and later life. This qualitative study aimed to understand experiences of autism …

What is important in measuring quality of life? Reflections by autistic adults in four countries

H McConachie, C Wilson, D Mason, D Garland… - Autism in …, 2020 - liebertpub.com
Relevant and valid measurement is crucial in determining whether interventions and
supports have improved the quality of life (QoL) of autistic people. However, it is possible …

[HTML][HTML] Mental wellbeing of family members of autistic adults

R Herrema, D Garland, M Osborne, M Freeston… - Journal of autism and …, 2017 - Springer
Family members are often the primary caregiver for autistic adults and this responsibility may
impact on the carer's wellbeing and quality of life. 109 family members of autistic adults …

Co-design of an NHS primary care health check for autistic adults

H Taylor, B Ingham, D Mason, T Finch, C Wilson… - …, 2023 - journals.sagepub.com
Autistic people experience more health conditions and earlier mortality. This study
investigated views about a primary care health check for autistic adults to inform its design …

[HTML][HTML] Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study.

J Parr, L Pennington, H Taylor, D Craig… - Health Technology …, 2021 - ncbi.nlm.nih.gov
BACKGROUND Eating, drinking and swallowing difficulties are common in young children
with neurodisability. These difficulties may lead to inadequate calorie intake, which affects a …

[HTML][HTML] Coping with uncertainty in everyday situations (CUES©) to address intolerance of uncertainty in autistic children: an intervention feasibility trial

J Rodgers, J Goodwin, D Garland, V Grahame… - Journal of Autism and …, 2023 - Springer
Background Anxiety related to uncertainty is common in autism. Coping with Uncertainty in
Everyday Situations (CUES©) is a parent-mediated group intervention aiming to increase …