A systematic review of reasons for gatekeeping in palliative care research

MC Kars, GJMW van Thiel, R van der Graaf… - Palliative …, 2016 - journals.sagepub.com
Background: When healthcare professionals or other involved parties prevent eligible
patients from entering a trial as a research subject, they are gatekeeping. This phenomenon …

Advance care planning for patients with chronic respiratory diseases: a systematic review of preferences and practices

LJ Jabbarian, M Zwakman, A van der Heide, MC Kars… - Thorax, 2018 - thorax.bmj.com
Background Advance care planning (ACP) supports patients in identifying and documenting
their preferences and timely discussing them with their relatives and healthcare …

[HTML][HTML] When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief-and loss theories

EM Kochen, F Jenken, PA Boelen, LMA Deben… - BMC palliative …, 2020 - Springer
Background The availability of interventions for bereaved parents have increased. However,
most are practice based. To enhance the implementation of bereavement care for parents …

Being there: parenting the child with acute lymphoblastic leukaemia

MC Kars, MSH Duijnstee, A Pool… - Journal of clinical …, 2008 - Wiley Online Library
Aims and objectives. To gain insight into the lived experience of parenting a child with
leukaemia during treatment. Background. Diagnosis of leukaemia in children leads to an …

[HTML][HTML] Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: a qualitative study

LM Verberne, MC Kars… - European journal of …, 2019 - Springer
Parenting and providing extensive care to a child with a life-limiting or life-threatening
disease while being aware of the future loss of the child are among the most stressful …

Interventions guiding advance care planning conversations: a systematic review

JC Fahner, AJM Beunders, A van der Heide… - Journal of the American …, 2019 - Elsevier
Background Advance care planning (ACP) is a communicative process of defining
preferences for future medical care. Conversation guides support professionals to conduct …

[HTML][HTML] Perspectives of patients with type 1 or insulin-treated type 2 diabetes on self-monitoring of blood glucose: a qualitative study

J Hortensius, MC Kars, WS Wierenga, N Kleefstra… - BMC Public Health, 2012 - Springer
Background Self-monitoring of blood glucose (SMBG), including self-regulation, is an
important tool to achieve good glycemic control. However, many patients measure their …

Parental experience at the end-of-life in children with cancer:'preservation'and 'letting go'in relation to loss

MC Kars, MHF Grypdonck, MC de Korte-Verhoef… - Supportive Care in …, 2011 - Springer
Purpose For children with incurable cancer death usually is anticipated and preceded by a
phase of palliative care. Despite recognition that parents have difficulty adapting to a …

[HTML][HTML] Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

IJ Korfage, G Carreras, CM Arnfeldt Christensen… - PLoS …, 2020 - journals.plos.org
Background Advance care planning (ACP) supports individuals to define, discuss, and
record goals and preferences for future medical treatment and care. Despite being …

[PDF][PDF] Being a parent of a child with cancer throughout the end-of-life course.

MC Kars, MHF Grypdonck… - Oncology Nursing …, 2011 - researchgate.net
Purpose/Objectives: To elucidate parents' experiences when caring at home for their child
with incurable cancer and to show how parents give meaning to their experiences …